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is a dynamic source of information and insights about certain rare diseases.

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Fabry Disease Hereditary Angioedema Metachromatic Leukodystrophy Sanfilippo Syndrome

Fabry Disease

Fabry Disease is a rare hereditary disease that is characterized by heart, kidney and central nervous system problems as well as pain in the hands and feet (acroparesthesia), skin rashes (angiokeratoma), heat intolerance, fatigue, and frequent stomach upset including cramping, diarrhea, and nausea.
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Hereditary Angioedema

One of several types of angioedema, hereditary angioedema (HAE) is a rare genetic disease characterized by sudden recurrent attacks of edema (swelling) usually involving the hands, arms, feet, legs, thighs, face, or genitals, severe abdominal pain, vomiting, and potentially life-threatening swelling of the larynx.
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Metachromatic Leukodystrophy

Metachromatic leukodystrophy (MLD) is an inherited disorder that causes fatty substances (lipids) to accumulate in key cells throughout the body.
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Sanfilippo Syndrome

Sanfilippo syndrome, also known as mucopolysaccharidosis III (MPS III), is a rare genetic disease that affects many body systems and may lead to behavioral problems, deterioration in mental development, and damage to different body organs.
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For Healthcare Professionals

Are you a healthcare provider looking for a dynamic resource of information about certain rare disorders? BraveCommunity.com is pleased to offer disease overviews, case studies, resources and the latest news all in one place, and all specifically created for healthcare providers. Click here for more information.

Hunter Syndrome
& Gaucher Disease

We’ve recently re-organized our BraveCommunity.com website. Information on Hunter syndrome (MPS II) can now be found at www.HunterPatients.com, and our Gaucher disease information is located at www.GaucherPatients.com. Please visit these sites to stay updated on the latest disease information.

Welcome To Brave Community

Brave Community is an online resources for patients, families, and health care professionals seeking more information about certain rare diseases and living with rare diseases. The web site is developed and maintained by Shire Human Genetic Therapies (HGT), a business unit of Shire plc.

BraveCommunity currently features information for 6 rare diseases:

Fabry diseases
Hereditary angioedema (HAE)
Metachromatic leukodystrophy (MLD)
Sanfilippo Syndrome

To learn more, please select your country from the right column.

Brave Community

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Fabry Disease

Make-A-Wish Grants Cranston 14-Year-Old a Trip to Italy

7,000 Bracelets for Hope(TM) Campaign Raises Awareness for Over 7000 Rare Diseases - Redorbit.com

Couple lobbied Congress about rare diseases - Journal-News

Raise Your Hand to Help Millions of Americans Affected by Rare Diseases - Business Wire

Hereditary Angioedema

SSPTV Kapes Family Sanfilippo Syndrome

How one woman helped change the treatment landscape for a rare swelling disease

7,000 Bracelets for Hope(TM) Campaign Raises Awareness for Over 7000 Rare Diseases - Redorbit.com

Couple lobbied Congress about rare diseases - Oxford Press

Metachromatic Leukodystrophy

Local family donates libraries in honor of their child with rare disease

7,000 Bracelets for Hope(TM) Campaign Raises Awareness for Over 7000 Rare Diseases - Redorbit.com

Couple lobbied Congress about rare diseases - Journal-News

Raise Your Hand to Help Millions of Americans Affected by Rare Diseases - Business Wire

Sanfilippo Syndrome

Couple continues fight against sons' rare disease

From a rare disease, an uncommon charity

Collin County Resident Needs Your Help

Family Keeping Up Hope For Child With Rare Disease

For Healthcare Professionals

Hunter Syndrome
& Gaucher Disease

Welcome To Brave Community

Select Your Country:

Brave Community

Customize your experience

Fabry Disease

Make-A-Wish Grants Cranston 14-Year-Old a Trip to Italy

7,000 Bracelets for Hope(TM) Campaign Raises Awareness for Over 7000 Rare Diseases - Redorbit.com

Couple lobbied Congress about rare diseases - Journal-News

Raise Your Hand to Help Millions of Americans Affected by Rare Diseases - Business Wire

Hereditary Angioedema

SSPTV Kapes Family Sanfilippo Syndrome

How one woman helped change the treatment landscape for a rare swelling disease

7,000 Bracelets for Hope(TM) Campaign Raises Awareness for Over 7000 Rare Diseases - Redorbit.com

Couple lobbied Congress about rare diseases - Oxford Press

Metachromatic Leukodystrophy

Local family donates libraries in honor of their child with rare disease

7,000 Bracelets for Hope(TM) Campaign Raises Awareness for Over 7000 Rare Diseases - Redorbit.com

Couple lobbied Congress about rare diseases - Journal-News

Raise Your Hand to Help Millions of Americans Affected by Rare Diseases - Business Wire

Sanfilippo Syndrome

Couple continues fight against sons' rare disease

From a rare disease, an uncommon charity

Collin County Resident Needs Your Help

Family Keeping Up Hope For Child With Rare Disease

For Healthcare Professionals

Hunter Syndrome& Gaucher Disease

Welcome To Brave Community

Select Your Country:

Hunter Syndrome
& Gaucher Disease