Welcome to Brave Community
Brave Community is an educational resource for patients/caregivers and healthcare providers looking for information about certain rare diseases. Brave Community offers comprehensive disease overviews, new stories, links to relevant Web sites, and a series of educational resources such as fact sheets, case studies and presentations. Our goal is to provide high quality, scientific disease information.
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News Article Feature
The News Articles section is updated regularly using advanced search-engine technology and careful screening. Our news feeds selectively provide you with items of interest and importance—so you don’t have to spend time manually searching online. For example:Hunter Syndrome News Articles
Welcome To Brave Community
Brave Community is an online resources for patients, families, and health care professionals seeking more information about certain rare diseases and living with rare diseases. The web site is developed and maintained by Shire Human Genetic Therapies (HGT), a business unit of Shire plc.
BraveCommunity currently features information for 6 rare diseases:
- Fabry diseases
- Hereditary angioedema (HAE)
- Metachromatic leukodystrophy (MLD)
- Sanfilippo Syndrome
To learn more, please select your country from the right column.