Fabry Disease News Articles
The News Articles section is updated regularly using advanced search-engine technology and careful screening.
Our news feeds selectively provide you with news items of interest and importance—so you don’t have to spend time manually
searching online. Using our search engine’s system of “feeds” (news sources, such as CNN, MSN, or Yahoo) and “filters”
(search terms, such as “genetic disease”), we identify news items of interest, and then screen them for relevance and
appropriateness prior to posting.
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Source: http://abcnews.go.com/
3/23/2012 4:03:52 PM
When Deborah Sittig noticed her son was not making the typical baby milestones like sitting up, walking and crawling at the usual ages, she knew something was wrong.
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Source: CardiologyToday.com
3/23/2012 3:58:29 PM
On the heels of this annual event, the FDA is today sponsoring its inaugural FDA Rare Disease Patient Advocacy Day.
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Source: http://www.lvrj.com/
3/23/2012 11:04:37 AM
For people with a rare and serious disease, the journey to getting an accurate diagnosis and confirming a proper treatment regimen can be arduous. Rare diseases, including some cancers, can be difficult to diagnose because symptoms are often misleading, misunderstood or misinterpreted. As a result, it can sometimes ...
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Source:
9/30/2011 1:28:04 PM
The Make-A-Wish Foundation of Massachusetts and Rhode Island recently granted 14-year-old Michael Gay, a Cranston resident, a trip to italy. Gay is diagnosed with Fabry's Disease.
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Source: "rare disease day" - Bing News
4/26/2011 3:02:08 PM
DANA POINT, Calif., Feb. 8, 2011 /PRNewswire/ -- February 28, 2011, is Rare Disease Day, but at the Global Genes Project, it's rare disease awareness day every day of the year. Leading up to Rare Disease Day 2011, the Global Genes Project will be calling attention to the lack of drug treatments available for millions ...
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Source: "rare disease day" - Bing News
2/7/2011 8:16:00 PM
Charlene and George are working to bring more awareness to rare diseases. They visited state and national policymakers in Washington, D.C., last week, just ahead of Rare Disease Day Feb. 28. “Many people can’t advocate for the disease,” George said.
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Source: "rare disease day" - Bing News
2/7/2011 4:24:00 AM
DEERFIELD, Ill.--( BUSINESS WIRE )--Today, Lundbeck announced its second annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance each year on February 28 to raise awareness of rare diseases. Through an online public awareness initiative, Lundbeck will donate research ...
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New Fabry Resources
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Personal Stories
Would you like to read about others living with, or caring for someone with Fabry Disease.
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