If you or someone you know has Fabry Disease it is helpful to get as much
information as possible about the disorder. Talk with your doctor about other sources of information, including other
healthcare professionals who can help you learn more about Fabry Disease and how it may
impact you and your family. You can also contact the following organizations and foundations for more information
about Fabry Disease.
BraveCommunity.com is intended for residents of the United States. Because rare diseases impact a
small number of patients, the community of support and education often spans the collective efforts and experiences
of patients, families, medical professionals, and researchers across the world. The following links may provide education
about rare diseases that may be helpful to you. These sites may be subject to policies, regulations or laws that are different
from those in the United States. Shire HGT is not responsible for the content on these sites except for those sites operated by
Shire HGT. They may have different policies (including privacy policies) than BraveCommunity.com and may contain information
that reflect local standards, including medical standards of care different from those in the U.S. You should discuss
any information you receive on the internet about medical care with your doctor before making medical decisions.
Fabry Disease Educational Materials
Brave Community is pleased to provide specially developed Fabry educational materials. The links below offer additional detail about many aspects of Fabry disease including a disease overview, information on the various organ systems affected by Fabry disease, as well as information about well-being and management for individuals with Fabry disease