Management of Hereditary Angioedema

The medical management of HAE may include therapy to prevent attacks or in some cases medical attention and/or hospitalization to treat attacks, particularly if they are severe. There is no cure for HAE and research into the treatment of HAE is ongoing.

News Feed

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On Rare Leap Day, Remember Rare Diseases
When Deborah Sittig noticed her son was not making the typical baby milestones ...
FDA sponsors first Rare Disease Patient Advocacy Day
On the heels of this annual event, the FDA is today sponsoring its inaugural ...
SSPTV Kapes Family Sanfilippo Syndrome
One family with ties to the Hazleton area shares their story of San Filippo ...

New Fabry Resources

Brave Community is pleased to provide specially developed Fabry educational materials.

Personal Stories

Would you like to read about others living with, or caring for someone with HAE (Hereditary Angioedema). Perhaps you have an insight or experience you can share with the community? Reach out and help others by sharing your insights, perspectives, and experiences. We are looking for short stories from our members – even a few sentences can be helpful. Please click here for more information about submitting your story. We look forward to hearing from you!

Management of Hereditary Angioedema

News Feed

Putting the spotlight on rare diseases

On Rare Leap Day, Remember Rare Diseases

FDA sponsors first Rare Disease Patient Advocacy Day

SSPTV Kapes Family Sanfilippo Syndrome

New Fabry Resources

Personal Stories