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Source: http://www.lvrj.com/
3/23/2012 4:05:14 PM
For people with a rare and serious disease, the journey to getting an accurate diagnosis and confirming a proper treatment regimen can be arduous. Rare diseases, including some cancers, can be difficult to diagnose because symptoms are often misleading, misunderstood or misinterpreted. As a result, it can sometimes ...
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Source: http://abcnews.go.com/
3/23/2012 4:03:07 PM
When Deborah Sittig noticed her son was not making the typical baby milestones like sitting up, walking and crawling at the usual ages, she knew something was wrong.
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Source: CardiologyToday.com
3/23/2012 3:59:10 PM
On the heels of this annual event, the FDA is today sponsoring its inaugural FDA Rare Disease Patient Advocacy Day.
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Source:
9/30/2011 1:33:38 PM
One family with ties to the Hazleton area shares their story of San Filippo Syndrome
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Source:
9/8/2011 4:00:00 AM
For more than 30 years, Janet Long's life was a medical mystery. At the age of 7, she began experiencing unexplained, repeated and painful episodes of swelling all over her body.
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Source: "rare disease day" - Bing News
2/8/2011 2:53:00 PM
DANA POINT, Calif., Feb. 8, 2011 /PRNewswire/ -- February 28, 2011, is Rare Disease Day, but at the Global Genes Project, it's rare disease awareness day every day of the year. Leading up to Rare Disease Day 2011, the Global Genes Project will be calling attention to the lack of drug treatments available for millions ...
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Source: "rare disease day" - Bing News
2/7/2011 8:16:00 PM
Charlene and George are working to bring more awareness to rare diseases. They visited state and national policymakers in Washington, D.C., last week, just ahead of Rare Disease Day Feb. 28. “Many people can’t advocate for the disease,” George said.
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Source: "rare disease day" - Bing News
2/7/2011 4:24:00 AM
DEERFIELD, Ill.--( BUSINESS WIRE )--Today, Lundbeck announced its second annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance each year on February 28 to raise awareness of rare diseases. Through an online public awareness initiative, Lundbeck will donate research ...
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Source: "hereditary angioedema" - Bing News
1/5/2011 5:53:00 AM
Omar is being treated for hereditary angioedema, a disease that causes rapid internal and external swelling. Gimondo recalls a police officer knocking on her car window at 1:30 a.m. one day in 2008. The police were responding to a call of a woman, presumably dead, in a car. They thought it was her.
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Source: "hereditary angioedema" - Bing News
12/19/2010 4:36:00 PM
This is an inflammation of the tissues just under the skin. There are two types, hereditary and acquired. Hereditary angioedema is rare and genetic. Acquired angioedema is more common and often the result of an allergic reaction, and it typically affects the skin around the eyes and lips. I urge you to speak to your ...
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