Personal Hereditary Angioedema Stories

We know you love reading the personal stories others submit, but have you thought about sharing your own story?

It doesn’t need to be long – just a few sentences about an insight or success you’ve had. Dealing with a rare genetic disorder can be difficult. Sharing your insights and experiences might help someone else at a challenging time. Please consider taking a few moments to share your story. Email us at sharestories@bravecommunity.com to submit your story.

Personal Story Guidelines

Please keep in mind that we cannot post stories that mention a specific treatment, therapy or medication. BraveCommunity.com reviews all submissions prior to posting to ensure content is appropriate. Approved personal stories are posted approximately 1 week after submission. The content you submit to the site will be reviewed to ensure that they are appropriate and are not subject to legal or regulatory restrictions. You should understand that because the content you provide will be published on a site hosted by a manufacturer, that content will be regulated under generally the same requirements as any content published by us. We will also not publish offensive content or content that is insensitive to our users. We will not publish information about specific products or identifiable information about specific people or organizations without their permission.