Sanfilippo Syndrome (MPS III)Next Topic

Sanfilippo syndrome, also known as mucopolysaccharidosis III (MPS III), is a rare genetic disease that affects many body systems and may lead to behavioral problems, deterioration in mental development, and damage to different body organs. It is caused by a defect in an enzyme (sulfamidase) that normally breaks down substances in the body called glycosaminoglycans (GAG). GAG are long chains of sugar molecules that the body uses to build bones, cartilage, skin, tendons, and other tissues. In Sanfilippo syndrome, there is an insufficient amount of the sulfamidase enzyme, or no enzyme at all, enabling a type of GAG called heparan sulfate to accumulate in the cells. This buildup of heparan sulfate—primarily in the central nervous system—impairs cell function and eventually causes damage to tissues and organs, resulting in a variety of symptoms.

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Personal Stories

Would you like to read about others living with, or caring for someone with Sanfilippo Syndrome (MPS III). Perhaps you have an insight or experience you can share with the community? Reach out and help others by sharing your insights, perspectives, and experiences. We are looking for short stories from our members – even a few sentences can be helpful. Please click here for more information about submitting your story. We look forward to hearing from you!